Decades after their son was diagnosed with autism, the Jarboe family learned that he has a gene change in one of his chromosomes, structures inside cells that contain our DNA.Read More
Read more about: SPARK family stories
Get the latest autism updates from SPARK, including information about genes and ASD research, webinars, and personal stories from our community.
Our ‘genes’ page provides short, easy-to-understand descriptions of genes linked to autism. Under ‘research’, you’ll find the latest updates from SPARK and other autism studies. In our ‘stories’ section, families, scientists and others share their journeys. In our monthly webinars, speakers from the autism community provide useful information for families and people with autism. All are welcome–invitation links are issued in our monthly newsletter. If you have suggestions for webinar topics, please email us at firstname.lastname@example.org.
The Lombardis joined SPARK to help scientists learn more about autism and epilepsy, which both affect son RJ. They want better treatments to reduce the risks of seizures. “This is a matter of life or death,” RJ’s mother says.Read More
Kaylee Lurvey may go years without saying a word, and then speak a complete sentence. Her family hopes researchers will discover ways to unlock speech and other skills in people like Kaylee.Read More
Leigh Merryday Porch, a mother of a son with autism, wants to help researchers find out why autism affects people so differently. That’s one of the reasons she joined SPARK.Read More
Dylan Robey loves insects, all of them, even the dreaded cockroach. Like many people with autism, Dylan has what researchers call a special interest, in his case, in bugs. Others might call it a passion for the unappreciated.Read More
After enrolling in SPARK, the Meiles learned that their son has a change in the POGZ gene. The diagnosis helps explain a mysterious health issue.Read More
Researchers have taken notice of parental stress in families of children with autism. More than a few studies report that parents of children with autism experience more stress than parents of typical-developing children and parents of children with Down Syndrome.Read More